To Chapel Hill We Go

Hello Friends!
I know everyone has been anxiously awaiting the news about our doctor's visit today. Cutter has actually had two good days now. He has only had a few seizures each day. First of all, I want to say that we are so very blessed and thankful to be working with a doctor like Dr. Huffstutter. He has been nothing but wonderful, and he always makes us feel better when we see him. It is so reassuring that he is a wonderful Christian man that prays!

Today Cutter had an EEG, and the doctor told us that the EEG has not deteriorated any, so he was pleased with that. He did tell us that it had changed since the last time he had one. He saw that Cutter is now having seizures on both sides of his brain. The part of his brain that has a malformation is now affecting the other part. So both parts of his brain have learned how to seize. Therefore, he wanted to send us to Chapel Hill to get another opinion there. Down there he will undergo a 24 hour video EEG. He will be continuously hooked up and monitored.

He did tell us that he is not for certain that Cutter is having infantile spasms. He is leaning towards no because they are not like regular infantile spasms. However, he did say that there was a possibility that this is where that is heading or that Cutter could be having an atypical type of spasms. He also told us that Cutter himself is not typical. He told us that infants usually do not have seizures this young and that is uncommon that he is not responding to the medication. He is hoping that by working with the doctor in Chapel Hill they will figure out what these jerking movements are and how to stop the seizures entirely.

Cutter is still on the steroid and will be until May, though starting next Tuesday he will be weaned off of them. He told us that his immune system will continue to be low until he is only taking 1 dose a day. Therefore, we are still "quarantined." He is also now on a new medication that I cannot pronounce, much less spell! Who knows? It may do the trick!

So, we leave for Chapel Hill on Sunday and will be there at least 3 days. Please keep us in your thoughts and prayers, and if there is wireless internet available in the hospital I will be sure to keep everyone up to date!

Thank you SOOOOOO much for your prayers and support. We appreciate them all!!!