Day 4

Yesterday evening we learned that Cutter's MRI is still the same as it was when he was little. There are no new spots. We also learned today the information from his EEG shows that Cutter is still having seizures from the right frontal part of his brain, where he has been having them all the time. So, there are no new developments with his seizures. Praise the Lord!

So, the plan now is to add Phenytoin (Dilantin) to Cutter's current medications of Keppra, Zonegran and B6. The Phenytoin seems to be doing a good job right now of controlling Cutter's seizures. Yesterday he had 71. Today he has only had 14. They took the EEG leads off of Cutter's head today, a process that was not NEARLY as long as it was to get them off. Of course, he still screamed and cried, but it didn't last but about fifteen minutes. Now, the glue is stuck to his head, and it will be FOREVER until it comes off! But that is the least of our concerns!

We thought we were going to get to go home this evening but no such luck. No pharmacy around has Cutter's new medication, and our pharmacy at home said that they have not carried it in about ten years! So, we have to wait until the morning and get the prescription filled at the hospital pharmacy.

We will be home tomorrow and cannot wait! We are supposed to come back on Wednesday for an appt. with Cutter's neurosurgeon. He will meet with the epilepsy team here at UNC CH, and they will decide if Cutter is a candidate for surgery.

God has opened this door wide, and everything is working out well! I am reminded of a song: "God is in control. We believe that His children will not be forsaken." God has definitely not forsaken us and is taking very good care of us.

Thank you for your prayers! :) Hopefully we will update tomorrow!