Here is an update from last week: Cutter had over 200 seizures from June 5 to June 12. We talked with Dr. H. several times last week and decided to go ahead and try to make an appt. with the neurosurgeon at UNC Chapel Hill. We called on Thursday and were able to get in touch with Dr. Perry's secretary. They were going to go ahead and try to set things up for an EEG and an MRI. We didn't hear back from them before Wednesday. Monday, Tuesday and Wednesday were all very rough days for Cutter. He had lots of seizures, and they started to get harder. Dr. Huffstutter wanted us to get in touch with Chapel Hill and try to get Cutter admitted. After many phone calls and talking to many different people and waiting, waiting, waiting....they called us back and said they had a room ready for Cutter. Yay! So, yesterday we left for Chapel Hill and arrived at 7:00.
Cutter only had one seizure from 7:00 last night until 8:00 this morning. He has had a few today, and the doctors are working on a plan. He will have an MRI and an EEG at some point, but we are still waiting on those plans to be made.
Cutter slept great last night, right between us on a fold-out couch. :) He is thoroughly enjoying all of the many toys here and is currently in a toddler playgroup.
We will post more as we know more. Thank you for your prayers!!!
Ashely - So sorry for little Cutter!! God has a plan though! Just keep faith!! Praying for him and your family!!!!!!! UNC is a wonderful place BTW, we have had to take Kyle since he was 2 weeks for his metabolic disease, they are really helpful!! XOXO Kayla Arrowood
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