Then they took him down to the PET scan area. A PET CT scan is different than a regular CT SCAN because it look's at the brain's functions and not the anatomy. He had to have 45 minutes of quiet time before they sedated him. When they went to sedate him the IV no longer worked because it got kinked so they ended up putting the IV in his left foot. Mommy had to leave the room because of the new baby and the dangers of the radiation from the sedation. Mommy also can't be around Cutter for 24 hours. Boo. She can be in the room but can't touch him. After sedation Cutter had the PET CT SCAN. This lasted about 30 minutes. We then walked to the MRI station and he had an MRI that lasted about 45 minutes. He did really good during both procedures and came out of sedation quickly and easily.
We finally got back to the room somewhere close to 1:30. Cutter had not yet had his morning medications. We had no idea that we would be gone that long. He got his medications along with Fosphenytoin, which is a good anticonvulsant drug to stop seizures. He was given that through his IV. After that we headed down to the EEG room to have the electrodes put on his head for monitoring. Talk about a traumatic experience. It took about two hours, and he screamed and cried the entire time. He tried so hard to be brave. After it was over he politely told the tech "bye, bye!" He was certainly ready to come back upstairs.
When we got back upstairs Cutter fell asleep. He took a good nap and seems to be feeling good. His head is all wrapped in a turban and makes him a little top heavy at times. All day long he has had over sixty seizures. Hopefully, the Fosphenytoin will kick in soon, and the seizures will stop!
We will keep you updated! We feel the prayers! Thank you!
Hello my name is Jamie. I am from Marion, NC. I have had 110 surgeries in my short 21 yrs of life. I had 18 birth defects and I heard about your son from a friend on facebook. My thoughts and prayers go out to you. I know how it is to be poked out because the veins have nothing left to give, and how the days in hospital get old fast. But he is very lucky to have such great parents like you two. I dont know where you guys are from but just a piece of advice Levine Childrens Hospital in Charlotte NC is wonderful, you can go till you are 21 yrs old. I have personally been there and I have been to Children's Memorial Hospital. The reason I am saying Children's Memorial is because at most Children's Memorial Hospital you can go till you are however old. When I was just a child I had a 40 yr old woman next door to my room. It is a wonderful hospital to also go to because of that reason as long as the child goes there once before they are 18 they are there for life. :-D I will keep checking back and seeing how your son is doing. It's the little moments that you will remember the most during these times. Prayers and thoughts are with you. -Jamie
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