For the Love of Cutter

For the Love of Cutter

Wednesday, October 17, 2012

Day 4 Evening Update

Hello, Cutter's scan went well today, and we were able to get the information that Dr. Elkay needed. The sedation medication made him sleepy today, and he slept for a large portion of the day. He has been awake and pretty happy this evening, although he would love to just get down in the floor and run around and play. Dr. Elkay is going to let us go home sometime tomorrow. YAY! We got to meet with Cutter's potential surgeon this afternoon. His name is Dr. Eldad Hadar. He has been working at Chapel Hill for the past eleven years. He mostly practices on adults but used to only practice on children. He knows a lot about Cortical Dysplasia and has performed many surgeries on children with Cortical Dysplasia. He wasn't able to talk to us specifically about Cutter's case because he has not been presented with it yet, but he was able to answer some general questions. Next Thursday, the epilepsy board will convene to discuss Cutter and whether or not he is a surgical candidate. At that time Dr. Elkay will present all of the evidence and give her recommendation about what needs to be done. Dr. Hadar will let her know if surgery is the right route to go. So, we will know more next Friday. If surgery is not the answer, then I am sure the board will come up with another solution. It was a little overwhelming talking to the surgeon. Nothing he told us was scary or anything that we have not heard before. It was just overwhelming. The same sort of feeling that we felt last year before Cutter was presented to the board. We are fully aware that God is in control of this situation, just as He has been in the past. We know that He will not take us where His grace will not provide for us. However, we are human, and you can't help the feelings of anxiety and sadness. I think God expects this. This is just when we have to lean on Him the most. We know that God will take care of our Cutter. After all, He loves him more than we do! So, hopefully, Cutter will continue to have a good rest of the day. He has only had one seizure today, and that was without the extra medication that was given yesterday. We have been so grateful for all of the phone calls, text messages and prayers. We know that many people wish that they could be here with us right now, but your prayers and thoughts are just as important! A big thank you to Lester and Sara, though, for coming down with us this week so that we could have some help with the boys, especially Maverick. We couldn't have done it without them! Thanks to you all for your support. We will keep you updated. Love you!

1 comment:

  1. Dear Ashley, Cutter is always in my thoughts and prayers! I pray for you ALL! Thank you honey for taking the time to keep us updated on Cutter. I can't imagine what you and Chris are going through but as a Granma now it makes me ache to know what a hard road you are on. You are so right though.....God is in control and He loves you ALL so much. I'm so happy that you can lean on Him! It's still hard though but I love your dedication to God and your family! Honey, please know I am always thinking about you and am here if you need me for anything at all! Retirement gives me the freedom now to help! I love you and pray that the Surgeon's will find a way to help Cutter. Love you all! T

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