Chapel Hill Day 2

Good morning! Cutter slept very well last night. No seizures all day yesterday. Normally, that is great, but we needed him to have some while hooked up to the EEG machine, especially during his SPECT test today. We had told everyone to not wake him up until the test was set up because he is sure to have a seizure right upon waking up, and we didn't want to miss that opportunity. For the SPECT test a nurse and an EEG tech had to wait in our room until Cutter had a seizure. At that time, you have a matter of seconds to inject the nuclear medicine into his IV so that he could be scanned. We knew the medicine would not be Ready until 9:00 this morning. At seven the lab came up to fix some of the leads. Of course, this woke him up. And of course, he has a seizure. And of course, at that moment the EEG machine decides to mess up and is not on. And it is nowhere near 9:00. We were so worried he would stay wake and not have another seizure. Every time he started to get sleepy another doctor or two would come in. Four came by in a matter of minutes. We knew Cutter would need to go back to sleep so our nurse put a sign on the door to not come in. Around 9:35 Cutter woke up. The neurology team walked in at that moment. He had a seizure, the nurse injected the nuclear medicine and the event was recorded. All in a matter of 11 seconds. Who knew such an important test would be so time consuming, yet so short. It was a terribly complicated process, but one that went well After it was ready. About fifteen minutes after that the sedation team came to get him to be sedated for his scan. Luckily, Cutter had not had anything to eat or drink after midnight last night. You have a two hour window to be scanned after the medicine is injected. So, after fifteen minutes he was sent to the scanning dept. the scan is similar to an MRI but not quite the same. He did have the same medication that they use for MRIs. He has had it in the past, and usually does well with it. Right now, we are in the waiting room. The scan should take about an hour. Hopefully, they will see all that they need to see. I would love for the doctor to tell us we can go home a lot sooner than expected! We will update again soon! Thank you for prayers! God is so good! We give Him all the glory and praise!