5 months!

Today marks 5 months!!! 5 wonderful months of seizure freedom for Cutter! We give God all the glory! The longest Cutter has ever been without seizures is 5 months. That was back in 2011. We have reached that mark again! Cutter had his evaluation with Play Again Therapy today. He did very well. We should get the results soon. We go to Chapel Hill Monday for Cutter's first post-op EEG. It will be an ambulatory EEG, meaning he will get the leads put on and we will leave the hospital. He will have the leads taken off on Tuesday. Then we will get the results. Please keep us in your prayers!

Continued Blessings!

Today marks four months and three days since Cutter's last seizure! We had an appt. with Dr. Elkay today. She was very pleased to see him and how well he is doing. She told us that hopefully in September she can start weaning him off the Dilantin since that will be six months of seizure freedom! She is glad that all of his levels are low. It means his body does not need that much medicine anymore. She does not plan to increase anything. We were thankful for that! Cutter did so good today. He was so brave! We will have an EEG in August a neuro-psych test in August and possibly an MRI in September. Thank you for all of your continued prayers and support! Love you all!

Family Vacation!

We took our first family vacation to Dollywood this weekend! The boys had a blast. Last year we were discussing how we weren't sure if we were going to get to go on vacation or not this year because we weren't sure what the future held. We didn't know how Cutter would do with surgery or if his seizures would be worse by then. However, Cutter is still doing very well post-surgery, and we have not seen any signs of seizures. Praise the Lord! He is doing very well with his OT, and we are seeing improvement in his development every day. We were able to go to Dollywood twice and Splash Country once. The boys were a little hesitant about the water park and had to get warmed up to it, but they really enjoyed it overall. We had wonderful weather and even got to see some great fireworks! Every small thing that Cutter learns how to do impresses us so much. This summer he has learned how to put on his socks. This may not seem like much to anyone else, but to us, we were so excited! We have been working on self help skills for quite some time now. He is learning!!! We are still working on potty training, but he has started talking about it a lot more so we are hopeful that it will just "click" one day! We are still dealing with some behavior issues and some "rages." We are not sure if this is medicine related or due to the fact that the part that controls his emotions is no longer present. We were told to expect this, so we are not terribly surprised. However, it is very upsetting when he has a meltdown, and we are unsure of how to help him. When he gets in those moods he can't talk to you and tell you what is wrong. He can't answer your questions yet, so he just screams and cries. Luckily, these fits are few and far between. He definitely has more good days than bad ones. I am thoroughly enjoying being home with the boys this summer. I have gotten to spend so much time with them, and I think they have grown quite attached to my hip! We have done some crafts, read lots of stories, taken some trips and had some much needed play dates (and naps!). They play so well together and love each other so much. It is sweet to watch them learn things together and teach each other, as well. I am convinced that having Maverick was the best thing we could have ever done for Cutter. I pray that they are always close and always look out for one another. I have seen through Cutter's visits to the Play Again Therapy clinic that Cutter needs his own sensory gym at home! I would love to build one of these for him (and for Maverick). Maybe sometime in the future.... I would love to find out if there are some kind of grants for things like that?!? Can't wait to see what the rest of the summer holds! Thank you all for your support!

3 months!

Feeling so thankful and blessed today. Today marks three months since we have seen Cutter have a seizure! Praise The Lord! Cutter is doing so well. He is doing occupational therapy twice a week over the summer, and they are pleased with his progress. Thank you all for your support! It has meant a lot! He has come a long way! Love you all!

Two Months!!!

Thank you, Lord, for this wonderful day! Two months today of seizure freedom! Thank you all for your support!

No More Surgeons!!!

Hello Friends! Cutter had an appointment yesterday with his pediatric neurosurgeon. He said that everything looks great! He also said that Cutter does not need to come back and see him, and that he will follow him through Dr. Elkay!!! This was awesome news! He also said that there are no restrictions for Cutter, and that he can do any activity he pleases. We were so thankful for this wonderful, wonderful news! Thank you for your continued prayers and support!

Full of Life and Energy!

Cutter Update ! Things are still going so well! He did much better with going to school yesterday. He asks everyday to go now. I hear that he is pretty wild in class, but I can handle that. I can remember a time when we wondered if Cutter would ever be wild and full of energy. There was a time in his little life when he laid around and slept a lot. There was a time when we wondered what he would be like as a preschool child. And Praise God we don't have to wonder anymore! He is acting like every three year old boy I know! So, yes, I will discipline when needed, and of course, he needs to mind his teachers NO MATTER what, but I have to admit that I am enjoying this little boy who is full of life and energy! (And i am incredibly thankful for patient, understanding, loving teachers!) :)