Tuesday, January 14, 2014
Chapel Hill Update
Cutter's visit went very well. Started out rough with him crying and not wanting to be there. He weighs 36 pounds now! Dr. Elkay wants to wean him off Dilantin. At first she said it would take 16 months. Then 8 months. We're thinking with the way it is written it will only take 8 months. Is not touching any other medicines. No MRI or EEG right now. She is not ready to put him to sleep again yet. She called him "delicate" and said when we take him for his vaccinations that he does not need to get More than one in one day. We need to be cautious if he were to get sick and run a fever. This causes his threshold to be lowered. Keep Him healthy as we can to reduce chances of having a seizure. Dr. Elkay is leaving Chapel Hill in June. Said it was confidential so we don't know why. We will see her one more time before then, in April. We were upset about this. We definitely don't want to change doctors, especially in the middle of medication changes. One of the current doctors will take her patients. So, that is all for now! On our way home! (With three new ninja turtle shirts, a plastic horse and two hot wheels cars....they spoiled both boys at the hospital!) Thank you for the prayers!!!