Hello Friends,
On Monday we had another doctor's appt. with Dr. Huffstutter in Asheville. He had been discussing Cutter's case with the doctor down in Chapel Hill, and they are quite positive that Cutter's epilepsy is not going to turn into Infantile Spasms. (PRAISE GOD!!!) He told us to keep Cutter on his same medications and to keep tapering him off the steroid like we have been doing. He will be completely off the steroid May 18th, but at least he is out of the "danger zone." This means he can be around people again!
He talked to us about the ketogenic diet and is not very fond of it. He said that I would pretty much have to quit my job and become a full time nurse to Cutter because the diet is very tedious. He told us that if the seizures cannot be controlled with medication (and if he were his grandson) he would opt for surgery. We go back on June 1.
Hopefully, it will not come to surgery, and he will start to become seizure-free on a daily basis. His seizures are very inconsistent. Today he has had three. :(
Please keep praying! Chris and I are praying hard for some guidance and wisdom. Thank you all for your support!
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