Merry Christmas!

Merry Christmas, friends!

We have much to be thankful for this holiday season. First, and foremost, we are thankful for the reason that we celebrate Christmas, the birth of Jesus Christ. We are thankful for our salvation and for all of the many blessings God has given us.

On December 2nd we welcomed Maverick Lane to our family. Cutter adores being a big brother and is incredibly sweet to him. Maverick is already three weeks old, and we are all in love with him!

Cutter continues to do very well, though his seizures have started back. They started back on December 3rd, and we attributed this to all of the excitement and new routine since the new baby arrived. However, we feel like we have settled into a good routine, yet Cutter continues to have anywhere from 4-20 seizures a day. They upped his medicine (Dilantin) two weeks ago and lowered his Keppra based on his latest blood work results. We were hoping to see a positive change in all areas because of this but, so far, nothing. The good news is, however, that the seizures have not affected Cutter the way they have in the past. He bounces back very quickly and continues with whatever activity he was doing before he had the seizure. The seizures are very brief (seconds) and very mild.

We will call his doctors next week just to give them a report. We will continue to pray for God's guidance and will to be done when it comes to Cutter and his disorder. Thank you all for your prayers and support. We wish you all a very Merry Christmas!

Doing Great!

Hello Friends!

Cutter still continues to do wonderfully! Tomorrow will make 4 months since Cutter's last known seizure. We are so very thankful! God has truly, truly blessed us. Cutter is going through speech therapy right now and seems to be making very good progress. He is learning new words every day and how to use them, as well as show us what he is wanting when we ask him.

We are excited about the upcoming arrival of Baby Greene #2. We are anxious to see how Cutter does with the little one. We are sure he will do great. He seems to like babies, so we will see! In a little over 4 weeks his little brother will be here!

November is National Epilepsy Awareness Month....so in honor of this we would like for everyone we know to please spread the word about how our God has touched our little one's life. He has worked a miracle right before our eyes, and we are very blessed! And if you have never researched Epilepsy or Focal Cortical Dysplasia, please take a few minutes to do so, and you will understand more about Cutter's disorder.

Thank you for your continued prayers!

Great Report

Hello Friends!

We have not had to post anything in awhile because Cutter has been doing wonderfully! He has continued to be seizure-free. It has been over three months now. We are so thankful! We went to Chapel Hill yesterday for a check up, and the doctor said that he looks great! They did some blood work, but we don't know what his levels said yet. We do not have to go back for another three months!

Cutter is doing wonderfully in the area of motor skills. He is even getting to take a break from physical therapy right now! He starts speech therapy on Friday, and we are very excited about this! His speech therapist seems to be a sweet lady, and we look forward to working with her.

Thank you for all of the prayers and messages. We have wonderful friends and family! We love you guys!

Home Again!

We are home! Yay! The doctor came in this morning, said that she did not see any seizures on the EEG from Sunday to Monday, and that we could go home today! We feel so blessed to be going home already. There was not ONE SINGLE seizure seen on Cutter's EEG scans. Praise the Lord, Praise the Lord, Praise the Lord! They kept Cutter's medications the same, and we will go back in three weeks for a check up. We appreciate all of the messages, phone calls, and especially the prayers! Please keep praying!

Day 2-Chapel Hill

Hello!

We got great news yesterday about Cutter's EEG. The doctor did not see any clear seizure activity while Cutter was hooked up yesterday. Praise God! We are so thankful! The doctor said she was completely shocked, but we all know how God works in wonderful ways! The plan for now is that if Cutter does not have any seizures by tomorrow we get to come home! They are very pleased with what they have seen thus far. So, we are just waiting on tomorrow to hurry and get here. We are rejoicing and thanking the Lord for His many blessings. Thank you for praying!!!!!!

We're Here!

Hello!

We got to Chapel Hill yesterday around 11. When we got here, of course, they weren't ready for us. No one seemed to know that we were even coming, even though we were told a week ago that he was a "direct admission" and Thursday we talked to the neurosurgery team and neurology team on the phone! Anyway, while we were waiting on a room we went to the EEG clinic and got him all wrapped up and ready for his EEG. That was miserable. Just like last time. But after it was over he was fine and happy.

We are in room 6C01 in the Children's Hospital. It's bigger than the other rooms we have been in. This is great because Cutter can't travel very far due to the fact that he is hooked up to a computer. (And that cord isn't too long. We know this because Cutter jerked it out of the wall yesterday when he ran into the hallway going after a little car!)

Cutter is doing great! No seizures that we have seen, but they haven't read the EEG report yet. They are going to do that this morning and let us know what they saw. According to his neurologist, Dr. Greenwood, the plan is that if Cutter is not having any big seizures then after three days we will be coming back home. No surgery for him! They are not even going to inject the dye for the SPECT scan unless he has a big seizure. So, we are just waiting on the doctors to tell us what is going to happen from here on.

They did a blood level check and his Dilantin level was a little high. So they dropped his dosage just a little. We talked to the neurologist about possibly reducing all of his medications, but that is not an option right now. Cutter will have to go two whole years without having ANY seizures before they can reduce or completely remove any medications. :( So we will know with time.

Thank you for your prayers! God is good! We will update soon!

Updateym

Cutter is doing WONDERFUL! He still has not had any seizures (that we have seen) since July 9th. We are very aware of the fact that he could be having them with no outward symptoms, but we are hopeful that he has stopped. The doctors won't say for certain if they think it's his medications or if he is just going through a good spell. The longest Cutter has EVER gone without seizures is 7 weeks, so if he continues to do well, then this will be a record for him!

We leave for Chapel Hill on Friday. They are going to drastically reduce his medications, hook him up to the video EEG and check for seizure activity. Beyond that we are unsure of what will go on. His surgery is scheduled for Sept. 6th, but if he continues to be seizure free then they may not do surgery at all!

First, and foremost, we thank God for His hand in all of this. We know Who takes care of our little boy. Secondly, we thank you for your continued support and prayers. We will continue to update as frequently as we can!

Have a wonderful week!