Wednesday, August 29, 2012
Hello, Friends! Just thought we would give you an update about little Cutter. He started having seizures again on July 6th. Since then, we have only had a few days where he has not had any seizures at all. They range from 1-10 a day. They are still very brief, but we just can't get them under control. Once again, they seem to be happening right when he wakes up. On August 17th we took him to Mission Children's Clinic near the hospital to have an IV of fosphenytoin. This is similar to the Dilantin that he takes in liquid form. In the past when Cutter has been in the hospital with seizures this is the only medicine that would stop them completely. So, we were hoping to have good luck with the IV. He did not have anymore seizures on the day that he had the IV. However, he started back the next day with the seizures. :( We do not go back to Chapel Hill until October. We are really hoping that they can schedule him sometime before then. Sometimes the seizures make him so tired and agitated. It's awful. We are so glad that they are not long and not very frequent. They have increased his Keppra tremendously, but so far, that has not helped. Please keep us in your prayers! We really appreciate them!