For the Love of Cutter

For the Love of Cutter

Sunday, January 23, 2011

Update

Hello,

Just a quick update about Cutter. He is still having some breakthrough seizures, though they are still mild and infrequent. He had one on January 10th and on January 17th. They still seem to be triggered by lack of sleep. (He still rarely sleeps all night long without waking up!) However, even though he is still having seizures, he is moving right along! He is taking more and more steps on his own and standing by himself. His physical therapist said she thought he might be walking on his own by 14months. He turns 14 months on Tuesday, so we will see!

Please continue to pray for us. We know that is by God's grace and the prayers of our family and friends that we are able to deal with this situation! We love you all!

Saturday, January 1, 2011

Happy New Year!

Hello Friends,

Well 2010 has ended and what a year it was! We had many highs and many lows. Lots of laughs and lots of tears. Most importantly, there were a lot of prayers. Cutter is doing good and has made so much progress this year. From where we started January 22, 2010 to where we are now we are so very grateful. God has been wonderful to us and to little Cutter.

Until yesterday Cutter's last known "official" seizure was August 29th. (It is quite possible that he had a small seizure on November 1.) Yesterday, he had an episode that we are fairly certain was another seizure. The way he has them now makes it difficult to say whether or not it was a true seizure. He was drooling, staring and acting disoriented, all of his normal seizure activity signs. However, he did not fall asleep afterward and, in the past, this is something that always followed a seizure. Hopefully, it was a one time incident and he will not continue to have any more breakthrough seizures.

Thank you for your continued support and prayers. Please continue to pray for our little angel. God has been great, and we are fully trusting in Him. We are still hoping that through Cutter and his disorder someone will see the miracles of God and come to know Him and trust in His ways.

Best Wishes for the New Year!


Tuesday, December 14, 2010

Tis the Season to Count Our Blessings!

Hello Friends,

Just wanted to drop a line to tell you that it has been 15 weeks since Cutter's last known seizure! He is doing GREAT! Praise God! It is so wonderful watching him thrive and progress. He is not walking yet, but is getting closer every day. His physical therapist thinks that he may be walking by fourteen months.

Cutter turned 1 on November 25th. Wow. We can't believe how this year has flown by. So much has happened this year, and we really do have so much to be thankful for.

Please continue to keep us in your prayers. We are struggling with issues with our insurance company, and are hoping that things start to improve in that area. We don't want to just help Cutter, but we hope to be advocates for epilepsy patients everywhere.

Thank you for your support. Have a wonderful Christmas!



Friday, November 5, 2010

Still Doing Great!

Hello Friends,

It has been a while since I have posted, but that is a good thing! Cutter went 9 weeks without having a seizure. Then, this past Monday, it is very possible that he had a small seizure. He was so very tired, and I couldn't be sure, but it looked like he may have. However, there hasn't been any other seizure activity since then, so who knows? He seems to be doing great. He is very active, doing well in physical therapy and growing like a weed!

Thank you for your continued prayers. We would like for you to please pray for one more thing. Cutter's medication is very expensive each month, even with insurance. We have contacted several pharmaceutical companies and emailed LOTS of people about prescription assistance programs. We are praying that something helpful will come from that. If anyone has any suggestions we would be very grateful!

We are so appreciative of all of the support we have been given! We are so blessed!

Thursday, September 30, 2010

Chapel Hill Appt. Today

Hello Friends!

We traveled to Chapel Hill again today to meet with Dr. Perry, Cutter's neurosurgeon. Even though Cutter had a month long flurry of seizures he thinks that Cutter is doing great! He was happy about Cutter not having had any seizures in the past four weeks and thinks that Cutter is doing well with the medications that he is currently on. He also told us that he will be in touch with Dr. Huffstutter so that we don't have to go back down to Chapel Hill to see him anymore, unless something drastic changes. So, good news all around!!!

Cutter is doing wonderfully and continues to make great progress every day! He is a very curious little boy and stays into everything, but that's okay! We love it! He brings such joy to our lives with every passing day. We are so very grateful for all God has done for him (and for us).

Thank you for your prayers! Please don't forget about us!

Tuesday, September 21, 2010

It's Been Awhile!

Hello Friends!

I can't believe it has been a month since I last posted. There has not been a lot going on with Cutter, health-wise. Thank the Lord! It has been three weeks since his last seizure!!! He is doing wonderfully. He is crawling all over the place, pulling up on everything and starting to "cruise." He is growing up way too fast!

We had a check up last week with Dr. Huffstutter. He thinks Cutter is doing wonderfully. He kept him on the same dosage of medicine since he is doing so well. We had a nine month check-up with Dr. Rowland, and he, too, was happy with Cutter's progress. Next week we go to UNC-Chapel Hill for another visit with the neurosurgeon. We will update you about how that appointment goes!

Thank you again for all of the prayers and support. God has been so great. He gets all the glory!!!


Sunday, August 22, 2010

The Latest

Hello Friends,

Here is a quick Cutter update. Cutter is still having small seizures. They continue to be short and do not seem to affect him like they did when he was younger. We were hoping that the new dosage of medicine would stop the seizures again, but so far, no luck. We do not go back to Dr. H. until September.

Cutter continues to do well with his therapy, and he is such a joy to be around. He is truly a blessing! Thank you for your continued prayers and support! We know that it could be much worse. We are so thankful that he continues to thrive and be active! :)

We will keep you updated!