Cutter has done wonderfully since our visit at Chapel Hill. We have yet to see any seizure activity. We took Cutter to Chapel Hill on April 3rd for his MRI and a follow-up visit with Dr. Elkay. They gave Cutter Versed to help calm him down. He did great with that. They had to poke him three times to get an IV started. They thought that this might be because he was not able to eat or drink anything for six hours prior. When they started the sedation Cutter fought it terribly. Even though we know he was tired, he had the hardest time just giving in and falling asleep. Finally, the sedation really kicked in and he was sound asleep.
The MRI took about an hour. He woke up briefly after they unhooked the sedation. He was quite grumpy. Then he saw us and calmed back down and fell asleep for another hour. When he woke up the first thing he wanted was milk. Of course! The child goes through a gallon of milk every other day or so! We then went to Dr. Elkay's office and spoke with her about how Cutter had been doing. She told us that Cutter had had an FMRI today, and I told her that the nurse practitioner told me that it was just a regular MRI. An FMRI is a functional MRI that shows the functions of the brain. A regular MRI shows the structure of the brain. She was not happy that they did not follow her orders. She was hoping that maybe the NP just didn't know what she was talking about and that it truly was an FMRI. She scheduled his next visit for June 5. Sometime between now and then Cutter is supposed to have a neuro-psych evaluation to check on his development. She left his medications the same this time.
A few days later we called back to see if it was the right MRI or not. It was not. So, we were pretty upset that we had went through all of that for nothing. Putting your child to sleep is a terrible process. Draining for all those involved. However, she said that she was going to be able to use the images to do further study on Cutter. So, hopefully, she will get something out of the results. We are not sure at this time whether or not he will have to have another MRI later.
Thank you for your continued prayers and support!